Let's Walk This Journey Together

Category: Depression

Keep Going in the Face of not Wanting to

I sit here thinking about how tired I am of this world, or more specifically, my broken mind with in this world. I firmly believe I will no longer have to suffer (Read: deal with) the craziness of my mind in the next life. the intrusive thoughts have been plaguing me a great deal lately. Sometimes I wish I could quiet the horrible things my mind brings before my mental and emotional eyes. The dissonance is, I am a mother.

As a mother, I am an example. As an example, I set the bar on the capacity and capability of how to keep going. If I give up, so too might my children. They have scars just like I have scars. New scars will form and my children and I continue through life. What a depressing thought. But that’s the reality of life. I don’t want my children to give up. They have a better chance of finding healing as they are discovering the origins of some of their mental health challenges now. It’s taken 30+ years for me to get to where I am today from the time my mind really started showing me its craziness.

Ultimately, the point is, I don’t want to be here anymore, but I can’t go anywhere yet. I’m sure I’ll end up having a long life, but that just depresses me more. I want to be with my husband. The man who would hold me when I broke down until I was able to move forward again. I don’t have that support anymore. I can’t rely on my children to take up that role because it’s not their role to fill. They don’t need my broken self weighing down their own fragile concerns. And yet, I am both a burden and a comfort for them.

Ever since BJ died, my children often told me “don’t die” when I left the house. It started with my youngest and my older two have also repeated the command as well. They don’t do it as often as they used to, but they still get nervous when I’m gone too long or when they don’t know where I am.

The point is, I can’t be done yet and that depresses me. I’m so ready to be done. Unfortunately, my time to be with my husband and free of this broken mind is not yet. So here I am pouring my heart and brokenness out for everyone to see. Whether I want to or not, I can’t leave my children to figure it all out on their own. They deserve the opportunity to learn from their broken mother’s hard-won lessons.

I hope and pray those lessons will have them some grief in the future. When choosing between my mental battle with myself and my children, I chose my children. I know I’m supposed to choose life, but I don’t. I choose them no matter how great the pressure is. They are my reason for staying.

How to Include Self-care in Your Everyday Life

Self-care is extremely important as I discussed in one of my previous posts. Now it’s time to figure out how self-care works. What do you do? Is it just going out with friends? Is it that pint of ice cream in the grocery store fridge calling your name? Let’s look at a couple of ways you can apply self-care to better your life.

The Pillars of Self-care

My research for this post lead me to a concept of self-care “pillars”. There are varying opinions on how many pillars there are, but seven seemed to be the most excepted. Macy Burkett of the University of Kansas wrote an article about these seven pillars. They are mental, emotional, spiritual, physical, environmental, recreational, and social.

It was great to see a breakdown of how to support your overall self-care needs, but the more I delved into the topic of these pillars, the more overwhelmed I became. Advice suggested making sure to include at least one or two things for each of those categories to ensure you are taking care of all your self-care needs.

A Different Set of Pillars

The feeling I got from the initial concept of the pillars as explained above was not of relief and enjoyment. It was a to-do list. Another thing to track and balance. The I came across a different set of the seven pillars when perusing the International Self-Care Foundation’s website. They are a little different as seen in the graphic below.

The second set of pillars are much closer to what I feel represents a good balance of self-care. It is more attuned to overall health than a to-do list. Pillars such as good hygiene and knowledge/health literacy are things a lot of people don’t think of as self-care, but it is. Did you know that something as simple as brushing your teeth is a form of self-care? You lower your risk for certain heart problems just by sticking that little brush with some paste on it in your mouth each day.

Let’s not pretend that everyone brushes their teeth every day, twice a day, and follows up with flossing. I’ll be honest and say I’m one of those who struggle with this simple task. It’s not reality for many other people as well for a multitude of reasons. Depression is a big one, but not the only reason why poor dental care occurs.

Depression is a vicious cycle. You have little energy. You feel useless, unimportant, like an embarrassment. Facing the world is overwhelming. Brushing your teeth, taking a shower, making something to eat other than cereal means you have to get up and look in the mirror. However, doing it helps you feel like you have accomplished something that day.

Another Way to Think of Self-care

I decided to simplify the concept for my own well-being. The only way for me to do that was to be a nerd and analyze the information. Here’s what I came up with.

So many of the activities found in each of the pillars could count for multiple categories. Why have specific categories when there is so much crossover? It made more sense to me to classify self-care under two categories: external and internal.

External self-care covers anything that influences your outer being. This could include your environment (the state of your house or desk) or your physical health (losing weight or personal hygiene are common examples). Internal self-care covers anything to do with your inner being. Your mental, spiritual, and emotional health falls into this category. Sometimes that pint of ice cream is just what you need in that moment – just be careful not to make a habit of it.

Under each category you have a choice of performing specific activities or embracing a different way of life. For example, external activities could include yoga, rock climbing, engaging in a hobby, or organizing your space. Keeping your environment organized is more of a different way of life than it is performing a specific activity. Internal activities could include meditation, attending church, socially interacting with others, or setting healthy boundaries with your friends and family.

Simply making sure I am covering both internal and external self-care brings me more peace and less stress than the pillars. That doesn’t always work for everyone. The act of organizing the activities to make sure they are covering all aspects of self-care in their life could be cathartic for others.

A Personal Example

At one point, my finances were very tight. (I’m still there in fact.) I had been so careful not to spend anything on me. Everything went to the bills or was used by my late husband. This went on for so long, I couldn’t even remember the last time I bought something frivolous for myself. So I did it. I bought myself something small like a candy bar and immediately felt relief. For the first time in a long time, I let myself enjoy the fruits of my labors. That little treat was my self-care in that moment.

The most important thing to remember is to love yourself. Remember you are loved. Whether you realize it or not, there are always people who are watching and praying for you. You may never know what an impact you are for those around you. Take care of yourself. You will find happiness in the process. I’m trying to apply those principles every day. Sometimes I fail, sometimes I succeed. Either way, it’s important to try. Let’s try together.

My Bi-Polar Disorder is Visiting a Major Depressive State

My deck is stacked with difficult cards. I am both physically and spiritually exhausted. Is the physical exhaustion I’m feeling due to the physical inactivity aspect from when I shut down after BJ died? But it’s been eight years since that major shut down.

I’m wondering if that’s what my body and mind are trying to do. Am I shutting down again? Why? What is the catalyst this time? Before BJ died, I shut down twice. The first was when I lost my job due to the company closing. That lasted about six months. The second was after my last miscarriage. That episode lasted around three to four months. It was years after BJ died to emerge from the shutdown.

While writing this post, I realized that my exhaustion right now is a sign of the bi-polar depressive state I feared was emerging when I wrote a previous post a month ago. Identifying the source of such feelings as being something in my brain chemistry is both freeing and frustrating.

I take medication to help stabilize my moods and prevent super high mania and super low depression. Medications, however, are not a perfect remedy. For those who think they can take a pill and be all better when dealing with chronic issues, mental or physical, here is your gentle reminder that it’s not true. Chronic issues are not usually curable. There will always be a need for treatment in some form. Special diets, medication, therapy, et cetera.

So where do I go from here? The answer is move forward. Get up and do what I need to do as best as I can. How do you get up and do things when you are so far down. Yes, knowing the source is helpful because I now know what I’m fighting. It’s also difficult because you see what you need to do and kick yourself down when you don’t get up and do it. I know I will be “called out” for blaming those shortcomings on an illness at some point. It’s just an excuse in their opinion. Those who truly understand the situation will realize the illness is actually an explanation.

I need to try to get up and do what I can knowing that some of those times I really can’t get myself up. It’s not because I’m lazy, it’s because I just don’t have it in me to move forward in that moment. And I need to give myself permission to say, “That’s okay.” The key is to keep trying. That is what the Lord wants from all of us. Leave the past in the past and keep moving forward in the degrees you know you can.

The Importance of Self-Care

One of my friends mentioned how they have been living in a difficult situation. The most important thing about the situation was their overwhelming role in the household. They went to work, came home to take manage the house, care for the children, and went to bed only to wake up the next day to do it all over again. Sound familiar? They are by no means the first or last person to live that way. It’s not a lifestyle choice. It’s the circumstances we find ourselves in for one reason or another.

Mental health comes in many flavors. Functioning, semi-functioning, and non-functioning is my breakdown. Remember that with mental health, just like physical health, people sometimes move both ways on the scale. A person who is non-functioning due to major depression can eventually work their way back up to a semi-functioning or functioning state. There are always exceptions, but for some it is possible.

The Pendulum of Life

At this point in my life, I am in a semi-functioning state. My bi-polar disorder (BPD) holds me back in many ways. Not everyone realizes that BPD does not mean they experience severe fluctuating moods throughout the day. BPD shifts from mania or depressive and back over the course of weeks and months. My sister and I equate the process to a swinging pendulum in a grandfather clock. I can be in a depressive state for months. Commitments will fall through, my bedroom becomes a cave, sometimes I pig out on sweets, and my children miss me. Then the pendulum swings, and I’m in my manic state.

While I love my manic state, because I actually accomplish tasks, it doesn’t usually last more than a couple of weeks—maybe a month. I have medication which helps regulate my BPD, but medication is not the end all be all cure, and it’s not the only thing I need. Self-care is also a vital part of treating my BPD.

Define Self-Care

The most concise definition of self-care came from my alma mater, Southern New Hampshire University. They said, “Self-care refers to anything that you do to keep yourself mentally, emotionally, physically, socially, and spiritually healthy.” Even small acts of self-care in your daily life can have a big impact.

Why is it so important?

The National Institute of Mental Health provides even more information on self-care stating:

Self-care means taking the time to do things that help you live well and improve both your physical health and mental health. This can help you manage stress, lower your risk of illness, and increase your energy. Even small acts of self-care in your daily life can have a big impact.

National Institute of mental Health

Self-care impacts all aspects of our lives. The International Self-Care Foundation points out that something as simple as brushing and flossing your teeth could impact our heart health. With my friend, the gettogether we attended was their moment of self-care. They had a night to do what they wanted to do, not what they had to do. That time of relief is important to balance their needs with a break.

Remember that self-care doesn’t have to be static. You don’t need to do the same thing at the same time every week or month. If you have the opportunity and enjoy the activity, do it! Go with the flow and trust yourself to stop when life starts to get really hard. Take a moment to breath before facing life again.

I’ll write another post soon about how self-care is done. Stay tuned!

A Note from Gribble: It’s About to Get More Personal

Gribble here. My girl is embarking on a more personal journey, so I’ve added a new category in our posts! The category is “It’s Getting Personal”. I’m going to tell you the events of what she calls her “three years of hell” so you have a better understanding of the obstacles she navigated and still faces. Sympathy is not necessary or sought.

My girl’s life changed forever in 2016. The year began with a miscarriage and she lost her job due to the deep depression she experienced. Six months later, as she was just coming out of her funk, she unexpectedly lost her husband to a thrombotic embolism (a blood clot), leaving her to raise their three children (almost 12, 10, and 3) by herself.

Her uncle died one month later while she was trying to pack her house to move out of state. About a month and a half of homelessness followed while she moved her children and the cranky 10-year-old cat from one relative’s house to another. When she was finally able to procure permanent housing with her parents, she crashed down from survivor mode.

A very serious bout of clinical depression overtook her life when she exited survivor mode. Some family members discussed the need to have her admitted. They eventually decided that my girl’s children needed her presence more since their father was no longer there. I don’t know if that was what was best for the children, but that was the decision made.

Eight months after her uncle’s death, her husband’s grandmother died. A more specific diagnosis of Major Depressive Disorder (MDD) was added to her pre-existing conditions of Obsessive Compulsive Disorder (OCD), intrusive thoughts, Post Traumatic Stress Disorder (PTSD), and anxiety when she was able to emotionally get herself out of bed and to therapy.

Several months before the grandmother died and for two months following, my girl took care of her bedbound mother until her passing at the end of May 2017. Her mother was buried one week before her husband’s one-year anniversary.

Nine months later her cousin’s 21-year-old son died in a tragic car accident, two weeks later her daughter’s dog died, and about four months later her daughter’s 11-month-old kitten died. Her then 4-year-old was diagnosed with autism and therapy led to the discovery of my girl having Bi-Polar Disorder (BPD). She told me later that many things in her life, even prior to her husband’s death, made significantly more sense.

While she was not close to all of those who passed away, the fact that death loomed so close to home struck a nerve with each notification of loss and each step of her mental health journey.

Navigating life is tough. Please remember that this post is not meant to dredge up sympathy. It is simply meant to be informational. Her journey is changing, as is expected in life, and I feel it would be best for her to share that journey with all of you. Perhaps the growth and setbacks as she works through her grief, mental health, and spiritual travels will help someone else someday. I hope you find comfort or enlightenment in the posts.

If you choose to comment on a post, PLEASE BE KIND. Everyone deserves kindness in one aspect or another. Be that person who is kind, positive, and factual in your comments.

Now I need to get back to my place of safety before my girl’s puppy finds me. Happy reading!

Fighting Your Brain Chemistry Sucks – Depression Strikes Again

The Bi-Polar pendulum is swinging. I can feel it. I’ve spent a good part of my life in a depressive state. With meds, I have been able to have more time in a “manic” state (or what other have told me is likely a “normal” state of mind).

I’m scared of the swing. Some think mental health is an excuse, but it’s not. It’s a real thing. I don’t want to feel down and out. Just retraining my behavior doesn’t make things all better. While it can help, other factors are involved. Chemical and hormone changes in my brain greatly influence my state of mind. It makes depression harder to fight. Medication helps regulate those changes, but it’s not a perfect fix either.

I was reading an account of Elder Shayne M Bowen’s time on his mission with The Church of Jesus Christ of Latter Day Saints in Chile. He and his mission companion had been arrested and separated amid political unrest. He prayed to Heavenly Father saying, “I am nothing special, but I have been obedient and I need Thy help tonight.” He did receive the comfort he needed that night. He stated, “the seeds of this help had been planted many years earlier.”

A couple thoughts occurred to me when I read this. The first being, whether we feel like nothing and down in depression, we need to remember that we will be blessed if we stay obedient to what we know is true. Depression is no joke. It is often paralyzing in my life. Getting up is more than challenging. Having the energy to shower and dress is practically non-existent. I know I’m not the only one who feels this way.

I believe it is important to remember these challenges are not without reason or hope. That’s also not as easy as it sounds. Looking for spiritual aid has helped me. Knowing there must be a reason for the pendulum swinging back and forth gives me a sliver of hope that I will be free when my time comes to reunite with my husband.

Not dwelling on the past is a problem for me. Intrusive thoughts break into my calm moments and cause deep anxiety. It’s okay to look for help from past lessons. Depression will not magically go away, but I know I can potentially find some comfort while I work through the down times. Comfort is a miraculous blessing.

The message I’m trying to learn is remembering I am not nothing—even if I can’t get myself up and doing the things that are necessary. I am special to someone—even if I don’t always believe it. I know God is real—even if I sometimes feel forsaken. Others have gone through similar experiences, so I’m not alone. If I can’t think of anyone during those moments of my depressed mental state, I know Christ felt it. He knows, so I need to look to Him for help in the dark times.

You Are Worth It!

Do any of you remember Orkut? It was social media platform that launched in 2004 and shut down only a decade later, so I won’t hold it against you if you don’t remember it. In fact, the most popular population to use it were Brazilians. (p. 192)

Orkut’s ultimate demise came from issues revolving around its functionality. (p. 193) Problems such as friend limits and photo sharing quality inhibited the user experience. The platform simply wasn’t flexible enough to meet consumer needs. Was the issue the software itself? Was the issue because the developers chose not to update those features for some reason? Or was it because they didn’t know it was an issue until it was too late?

Orkut’s problem relates very much to our lives. How flexible are we? Do we have software (mental health) issues that are difficult to fix, that is if they can be fixed at all? Are we not open enough to take other points of view into consideration? Do we even realize we have a problem? Perhaps we realize but are too embarrassed to address it or think it’s too late to change.

These are the things I want to address. I could easily go into the current political and economic situation with this line of thinking, but I would rather not go down that rabbit hole. Instead, let’s look at the micro-level and concentrate on the individual – ourselves.

I have talked about mental health before, and it’s no secret I am a strong proponent for the issue. I deal with the effects of it on a regular basis, whether it is me, my children, my extended family, or friends and acquaintances. Our software – our brain’s mental health – only has a certain amount of ability to extend beyond its current programing. You can’t expect a person with Downs Syndrome to become a nuclear physicist. It is simply beyond their capacity. However, that is not necessarily the case with many circumstances. I have known those who use their mental health as a vehicle to gain things or as an excuse for why they can’t be expected to be held to a higher level of control.

Someone prone to depression and anxiety has the ability to rise above it, but it takes a lot of hard work, sometimes medication, counseling, and will power. That said, the pendulum always swings from amazing to down periods for which interventions are necessary. There are always exceptions, but the majority of those who experience it have a higher capacity then they realize. That majority includes me. It takes daily maintenance.

Down periods require a great deal of flexibility. We need to be able to recognize the signs and listen to our needs. Orcut lacked longevity due to a lack of flexibility. We have the potential for a great deal of flexibility within our own limits.

I remember the period after my husband passed away, I really needed someone to advocate for me to help me get the help I needed. I should have been on disability. I should have been in therapy immediately. I couldn’t do it myself – I simply didn’t have it in me to get any of it done. My husband had been my advocate, and he was gone. There was no way I could have anticipated his loss and set up a new advocate. Having a team is necessary.

The moral of the story? Be gentle with yourself. Listen to yourself and your needs. Create and follow through with intervention plans. Build a team who can help you monitor your needs. Advocate for yourself whenever possible. You are worth it.

Stigmastasis – It’s a real thing

I’ve learned a great deal in my graduate program. One of my classes spoke about a social media marketing campaign for breast cancer awareness. Some of you might remember seeing mysterious posts by individuals, such as “Dorothy, Red” or “Samantha, Blue” one October a few years ago. The key to the posts was a meme sent to ladies via Messenger asking them to post their name and the color of their bra. The reason for the posts? October is Breast Cancer Awareness Month.

While the meme is a good example of cyberactivism, was it really affective? The message was only sent to ladies, but they are leaving out the population of men who also deal with breast cancer. The Susan G. Komen website states, “less than 1% of all breast cancer cases occur in men.” The fact that the statistic is so small is good. However, what about those men who are in the “less than 1%” group? Being a small percentage doesn’t negate the need for the message.

It got me to thinking about a cause I am passionate about: mental health. For thousands of years the majority of the world suffered from what I think of as Stigmastasis – stuck in a state of stigma – when it came to mental health. Recently, though, we have seen an increase in candid conversations about mental health topics. Depression, anxiety, addiction, and bi-polar disorder are among the most common conditions in active discussion. I address my own personal experiences with mental health in my two-part post Metaphors and Me.

Those who suffer from stigmastasis don’t have all the facts about the topic in question. They don’t even know they have their own form of mental health condition. Sometimes their case is so extreme, they refuse to acknowledge the facts surrounding another mental health condition.

For example, stigmastasians (don’t laugh, you’ll hurt their feelings) do know know that OCD is not just a fear of germs. According to the National Institute of Mental Health, OCD also involves “unwanted forbidden or taboo thoughts involving sex, religion, or harm [and/or] aggressive thoughts towards others or self.” These thoughts are called intrusive thoughts. I know because I deal with them on a daily basis. For many years, I literally thought I was crazy – in a bad way. I was suffering from both intrusive thoughts and stigmastasis. I had to keep it quiet because what would happen if people knew? I would never act on those thoughts. I felt ashamed to be having them in the first place. A mental health practitioner I saw in my early 30’s finally identified and explained what they were. The horrible thoughts randomly floating into my brain was not a symptom of psychosis, it was a part of my OCD.

Psychosis is a disorder that is still truly taboo. Who wants to admit that they have psychotic episodes where they have literally taken a break from reality? I don’t say that lightly. I have a loved one who experienced psychotic episodes. Actions stemming from stigmastasis, shaming and shunning, are often paired with being honest with others about this serious disorder.

I have educated a number of people about intrusive thoughts and have even found others who also experience them. Because I was willing to talk about it, my daughter was able to identify what they were and tell me she was having them, too. She has the advantage of learning how to deal with them now instead of suffering from intrusive thoughts and stigmastasis for decades with the overwhelming anxiety and shame involved with not knowing.

Even mental health disorders that have more conversation and awareness than others suffer from an onslaught of stigmastasis. Addiction recovery receives a great deal of attention. Anonymous meetings for the many forms of addiction exist for the betterment of its members. And yet, organizations like Shatterproof are still working an uphill battle representing and acting to forward the cause of addiction treatment and recovery.

Let’s take a break and go back to the original topic for a moment. The problem with the breast cancer awareness meme is not as much the message as the lack of call to action. Awareness is wonderful. A call to action is the key to any activism campaign – cyber or otherwise.

So here is my call to action. Stamp Out Stigma, an initiative spearheaded by the Association for Behavioral Health and Wellness (ABHW) promotes their philosophy of the three “R’s” (recognize, reeducate, and reduce the stigma). It is an excellent direction to start moving. Below is a list of mental health disorders with links to learn more about each condition. Consider a way you can help further the cause of mental health awareness. A link for sharable resources from the National Institute of Mental Health is also posted (if available). Feel free to add disorders and links to mental health information in the comments below. What can you do to reduce the prevalence of stigmastasis against mental health?

Addiction RecoverySharable resources

ADHD/ADDSharable resources

Agoraphobia

AnxietySharable Resources

Autism Spectrum DisorderSharable resources

DepressionSharable Resources

Eating DisordersSharable resources

Bi-polar DisorderSharable Resources

Borderline Personality DisorderSharable resources

Children with Mental IllnessSharable resources

Obsessive Compulsive Disorder (OCD)

Post-Traumatic Stress Disorder (PTSD)Sharable resources

Psychosis/Psychotic

SchizophreniaSharable resources

Social Anxiety Disorder (formerly Social Phobia)

SuicideSharable resources

Trichotillomania

Depression and Donuts

Do you ever get those days when you can’t seem to make yourself get out of bed? Days when you just can’t handle anything except the bathroom and powdered donuts? That is me as I write this. Today is a day of grief. I miss my husband more than I can say today. It is a day of depression, and depression for me is beyond debilitating. The fact that I got all of my children out the door to school with clean clothes and that I’m actually at the computer writing this post is just about a miracle.

I’m not the only one who has these days, of this I know. My emotions are overwhelming and MIA all at the same time. A great contradiction, but such days are generally contradicting for me. What triggers the emotions and thoughts of despair and longing? Only those in the moment can answer that question. Coming from experience, sometimes not even they can answer it. So how do you deal with it? How do you move forward out of the murky swamps of uselessness? How do you make yourself get up and do what you need to do? How do you write a post like this without switching point of view multiple times in the same paragraph?

I’ve known many people who tell me to just get up and do whatever it is I am supposed to be getting done. While I love them with all my heart, they have never been where I am. I get to the point where I know what I need to do. My mind tells me to get up and do it. Sometimes I even feel the desire to get up and do it, but my body doesn’t respond. Instead, I lay in bed feeling like a loser, wishing I could be done with this journey and join my husband.

*** I’m going to stop and say at this point that I will NOT harm myself to join my husband. Wishing during moments of despair and doing are two entirely different things. ***

The truth of the matter is: There will always be deep down days like this for me. I know the signs and I take medicine to help keep those days to a minimum. Please don’t think that this post is about gaining sympathy. It is not. It’s about validating others’ who experience the same issues.

So what is the take-home message today? You are not alone. No matter how dark it gets, you are still not alone. I am here waiting for the darkness to pass just like many others, writing this post, and consuming my pilfered powdered donuts.